four years

diabetes, family, life
Image

yes, she even gets to enjoy chocolate cake!

Four years ago Aubrey was diagnosed with Type 1 Diabetes.

I would love to say that we’re better at this diabetes thing than we were four years ago. But everyday we question. “Why is her blood sugar high?” “Why did she drop so fast?” “Why is she waking up in the morning with such high numbers?”

Everyday it’s a struggle.

What is different today is how we handle it. We take each moment as it comes. We don’t let it stress us out. Her health and well-being are our number one priority. But we’re not going to beat ourselves up when she’s high or when we don’t know what’s going on with her numbers. It’s going to happen. Diabetes is unpredictable. That’s just how it is. It’s a 24/7 thing that we strive to do our best at controlling. But we also realize that we’re going to make mistakes, and Aubrey’s body is sometimes going to have a mind of its own. That’s just how it is.

And so we hope. We hope for a cure so that our daughter (and her older brother too!) will one day not have to deal with diabetes. We take each day as it comes. We educate ourselves. We empower Aubrey to learn to manage the disease as best she can at age ten. We encourage her to live life to the fullest. And we pray.

And each day, I give thanks to God that he has blessed us with four amazing, funny, sometimes challenging, but always inspiring kids. It just so happens that two of them also live with diabetes.

Advertisements

Colin’s d anniversary

diabetes, family, life

Today is the one year anniversary of Colin’s type 1 diabetes diagnosis. It caught us by surprise. But it hasn’t slowed us down!

I’ve written more about it over at T1 times 2.

Thanks to all who have supported us over the past few years as we’ve stepped into the diabetes world. Your prayers, concern and love have been a huge encouragement to us.

a day in the life of a T1 parent

diabetes, life

wake up to the alarm. go and wake the kids to get ready for school.

pack lunch for T1 3rd grader. fill out lunch journal listing the food packed for lunch along with carb counts so the school nurse can figure how much insulin to deliver.

lunch money for T1 5th grader. fill out lunch journal for school lunch menu with carb counts so a different school nurse can figure how much insulin to deliver.

make breakfast for the kids. make sure they check their blood sugar 1st. rush. the 4 year old twins want breakfast too. rush some more. the bus is coming. oops, need to give them insulin.

big kids are off to school. twins heading to preschool for the morning.

time to run to the grocery store to stock up on juice boxes and 15 gram snacks to take to both schools for their classroom diabetes kits. pick up the twins.

lunch. field a call from the 3rd grade nurse. blood sugar was high. she ate all her lunch. nurse wants to double check insulin dosage. 4.5, that’s right.

afternoon to do some laundry and pick up the house while the twins make more messes.

almost time for school to be over. call from 5th grade nurse. he’s low. gave a snack and a juice but still low. not sure if he should go on the bus. let’s re-check in a while.

20 minutes later, nurse calls back. blood sugar is up to normal range. he’ll be coming on the bus.

another call from the 3rd grad nurse. she is borderline. they will send her on the bus with an emergency snack just in case.

they’re home. and hungry. two 15 gram carb snacks coming right up. help with homework. send out to play.

dinner. check the blood sugars. eat. bolus.

baths. site change for the 3rd grader with the insulin pump. prep the materials. place it on the bum. ouch, that one hurt. tears.

bedtime snack. but first, check those blood sugars one last time.

bed. give 5th grader his long-acting insulin injection.

back to the laundry because it didn’t get folded.

5th grader appears in the living room. can’t sleep. feels shaky. check blood sugar yet again. he’s low. one more snack. back to bed.

one more attempt at folding the laundry.

glass of wine. realize that tomorrow is coming quickly. time for bed. need some sleep to do this all again.

kiss to my wife. head on my pillow. smile on my face.

thankful. hopeful. prayerful.

one year later

diabetes, family

Last year on this day our Aubrey was diagnosed with Type 1 diabetes.

There is nothing she did to get this. It just happened. Her pancreas has stopped producing insulin that her body needs to regulate her blood sugar.

And so what that means is insulin injections. At least 4x a day currently.

She has good days. She has not-so-good days.

Most times she has no problem with the finger pricks and needles and injections. Other times, she’s just not a fan.

But oh how brave she is.

She has lived this past year with life, with zeal, with enthusiasm, with joy.

Sure she wishes she didn’t have diabetes. And at least once every couple of weeks she asks me if they’ve found a cure yet.

But for 7 years old, I think she has handled it amazingly.

And that makes me one proud dad!