four years

diabetes, family, life
Image

yes, she even gets to enjoy chocolate cake!

Four years ago Aubrey was diagnosed with Type 1 Diabetes.

I would love to say that we’re better at this diabetes thing than we were four years ago. But everyday we question. “Why is her blood sugar high?” “Why did she drop so fast?” “Why is she waking up in the morning with such high numbers?”

Everyday it’s a struggle.

What is different today is how we handle it. We take each moment as it comes. We don’t let it stress us out. Her health and well-being are our number one priority. But we’re not going to beat ourselves up when she’s high or when we don’t know what’s going on with her numbers. It’s going to happen. Diabetes is unpredictable. That’s just how it is. It’s a 24/7 thing that we strive to do our best at controlling. But we also realize that we’re going to make mistakes, and Aubrey’s body is sometimes going to have a mind of its own. That’s just how it is.

And so we hope. We hope for a cure so that our daughter (and her older brother too!) will one day not have to deal with diabetes. We take each day as it comes. We educate ourselves. We empower Aubrey to learn to manage the disease as best she can at age ten. We encourage her to live life to the fullest. And we pray.

And each day, I give thanks to God that he has blessed us with four amazing, funny, sometimes challenging, but always inspiring kids. It just so happens that two of them also live with diabetes.

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Colin’s d anniversary

diabetes, family, life

Today is the one year anniversary of Colin’s type 1 diabetes diagnosis. It caught us by surprise. But it hasn’t slowed us down!

I’ve written more about it over at T1 times 2.

Thanks to all who have supported us over the past few years as we’ve stepped into the diabetes world. Your prayers, concern and love have been a huge encouragement to us.

hiatus

diabetes, family, life

I’ve been on a non-scheduled blogging hiatus. Life simply got in the way. Lots of trips to the doctor’s office fighting colds and allergies. Prepping and selling a house only to pack it all up and unload it into a new house. And a dropped laptop that shattered the screen didn’t help.

But it’s been good.

For it’s in the middle of all of this that I had a realization. I resigned my pastoral position last fall to focus on building up Front Porch Creative. In order to have health benefits for our family, Lynda went to work full-time at a local hospital. That left me at home managing our kids and most other home-life things.

I became a stay-at-home dad.

I didn’t have that in mind when I made this switch. I guess I really hadn’t thought about it. But four kids, two with chronic illnesses that require constant attention even when they are at school and two that are twin 5 year olds, demand a lot of my time. Add to that a house that always needs cleaned and laundry for 6 that doesn’t fold itself and my day is full.

And with this comes a brand new appreciation for stay-at-home parents. Because I’m one of them!

But all is good. Our family is well. We’re settling into our new home and loving it. The kids are wrapping up another school year. Lynda enjoys her varied critical care nursing roles at the hospital. And FPC has been able to help a few ministries strengthen their branding along the way.

And now it’s time to return to some routine here on the blog — even as we begin summer. So stay tuned — it’s time to begin again!

the last day of November

diabetes, family, life

it’s the end of November.

and with it, we are two years in with Aubrey and her type 1 diabetes diagnosis. six months for her older brother, Colin.

I know more about T1 that I ever dreamed I would. two of my children have an illness I knew very little about. it’s definitely been a learning experience.

each day is a new adventure. we learn more. we make adjustments. and we help them live as close to a normal life as possible.

I can say that I am so proud of both of them. they are rock stars. they each handle this disease with incredible bravery.

they say we are closer each day to a cure. and with that I am hopeful. and prayerful. for my two kiddos…and the many others out there that live with T1 each and every moment of their days.


this is the last post for diabetes awareness month. to learn more about type 1 diabetes and how you can help find a cure, visit JDRF.

Cure Apparel

design, diabetes

I’ve been searching for some interesting graphic designs with a diabetes theme – they’re hard to come by.

But I did stumble across Cure Apparel. They make some great tees to promote awareness of diabetes and the need for a cure

those little strips

diabetes

i find them everywhere.

on the bathroom floor.

on the kitchen floor.

a lone one sits on the dresser.

under the cushions of the couch.

and under the cushions of the love seat.

in the car.

out in the yard when I’m moving the lawn.

and most times when I find one or two or several of them together, I’m annoyed.

annoyed that the kids didn’t throw them in the trash.

but really I’m more annoyed that my kids have to use these strips multiple times each day.

all because of diabetes.

the finger pokes, the tests, the highs, the lows, the injection.

and that little strip reminds me each time I find it what my kids deal with each day.

then, I remember.

without that strip, we’d have no idea how high or low their blood sugar is.

we’d have no way to know the best amount of insulin to give them to help control their diabetes.

and I’m thankful.

thankful for those annoying little strips.

and for the hope we have that with them (and with the use of carb counting and insulin too!), my kids are able to manage this disease.

so I guess I don’t mind finding those little strips all over the house.

but would it be too much to ask for them to throw them in the trash can every once in a while?!

 

* November is Diabetes Awareness Month. I’m taking several posts this month to highlight and bring attention to diabetes and the need for a cure.

world diabetes day

diabetes, family

today is world diabetes day.

Over 300 million people worldwide have diabetes now. If nothing is done, this will rise to 500 million within a generation.

Something must be done.

A cure must be found.

Obviously this is something dear to our hearts as we have two children living with type 1 diabetes. Would you consider being a part of the cure.

Visit JDRF for more information on how you can help.

my two reasons

diabetes, life

these are the two reasons I’m wearing blue today.

they live each day with diabetes.

as their dad, I’m going to do all I can.

a cure must be found.

November is diabetes awareness month.

visit JDRF to see how you can help.

on my mind

diabetes, family, interests, life, music
  • It’s diabetes awareness month. Today and each Friday this month I’m wearing blue for diabetes. “Real men wear blue.” Doesn’t have the same ring to it…
  • Have you signed the Artificial Pancreas petition to help those living with diabetes yet?
  • I’m shedding some extra pounds via Weight Watchers. Am now down 8 pounds!
  • Started a couch to 5k training to help with the weight loss…and to get back in the routine of running. Enjoying it.
  • I may not stop at the 5K. May take it further. Anyone want to join me?
  • My Amazon wish list keeps growing with all the good music that’s come out recently. Christmas is coming, hint, hint!
  • Have you checked out GILT yet? Use my link to get access.
  • November is the month of not-full-school-weeks for my kids. It’s crazy how many days off they have in November.
  • Is it really November already? Let the Christmas music begin at the mall!
  • Launched a new site this week. A collection of things I like. Check it out and spread the word.
That’s what’s on my mind this Friday. What’s on yours?

a day in the life of a T1 parent

diabetes, life

wake up to the alarm. go and wake the kids to get ready for school.

pack lunch for T1 3rd grader. fill out lunch journal listing the food packed for lunch along with carb counts so the school nurse can figure how much insulin to deliver.

lunch money for T1 5th grader. fill out lunch journal for school lunch menu with carb counts so a different school nurse can figure how much insulin to deliver.

make breakfast for the kids. make sure they check their blood sugar 1st. rush. the 4 year old twins want breakfast too. rush some more. the bus is coming. oops, need to give them insulin.

big kids are off to school. twins heading to preschool for the morning.

time to run to the grocery store to stock up on juice boxes and 15 gram snacks to take to both schools for their classroom diabetes kits. pick up the twins.

lunch. field a call from the 3rd grade nurse. blood sugar was high. she ate all her lunch. nurse wants to double check insulin dosage. 4.5, that’s right.

afternoon to do some laundry and pick up the house while the twins make more messes.

almost time for school to be over. call from 5th grade nurse. he’s low. gave a snack and a juice but still low. not sure if he should go on the bus. let’s re-check in a while.

20 minutes later, nurse calls back. blood sugar is up to normal range. he’ll be coming on the bus.

another call from the 3rd grad nurse. she is borderline. they will send her on the bus with an emergency snack just in case.

they’re home. and hungry. two 15 gram carb snacks coming right up. help with homework. send out to play.

dinner. check the blood sugars. eat. bolus.

baths. site change for the 3rd grader with the insulin pump. prep the materials. place it on the bum. ouch, that one hurt. tears.

bedtime snack. but first, check those blood sugars one last time.

bed. give 5th grader his long-acting insulin injection.

back to the laundry because it didn’t get folded.

5th grader appears in the living room. can’t sleep. feels shaky. check blood sugar yet again. he’s low. one more snack. back to bed.

one more attempt at folding the laundry.

glass of wine. realize that tomorrow is coming quickly. time for bed. need some sleep to do this all again.

kiss to my wife. head on my pillow. smile on my face.

thankful. hopeful. prayerful.